My experience seeking medical treatment in the United States: How I was caught again amidst the cracks in the system.
Healthcare Sovereignty | Season 1 · Part 1
Writing down this experience is not to blame any particular doctor, nor to amplify my emotions, but simply to record it truthfully.
For me, this was more than just a medical experience; it was the first time I truly felt how I was rejected and then welcomed back within a foreign healthcare system. In processing this memory, I gradually realized that what I experienced wasn't just a personal ordeal—it was a story about a system. A story about how a system fails, and how, after a failure, one can regain the ability to correct itself.
Opening: Those few minutes at 11:47
February 6, 2026, 11:47 AM.
The clinic corridor lights were a bit glaring, and the air conditioning was too cold. I sat on a plastic chair in the waiting area, my phone screen lit up, but my palms remained cold. I was very nervous that day because this visit to the gynecologist wasn't for a routine check-up, but because of a sudden, heavy bleeding episode a few days prior.
The nurse called my name, I stood up, and followed her into the examination room.
After the door closed, I still held onto hope. I thought that as long as I explained my condition clearly and handed the documents to the doctor, things could at least start moving forward.
A few minutes later, I walked out of the examination room almost crying.
My mask was soaked with sweat, and the referral document in my hand was crumpled in my hand. I felt very clearly that even if someone had entered the hospital, it didn't mean that she had truly been accepted by the system.
The referral document was marked "Urgent".
It solved nothing.
(Image caption) February 6, 2026, the medical institution where Nara first received treatment. The exterior is gentle and orderly, but here, she felt the helplessness of being "rejected into dialogue" for the first time—the system exists in the building, but it may not be activated at the moment.
Part 1: Everything seemed to be under control. Let's go back a few months.
In September 2025, as arranged by my family doctor, I underwent my first comprehensive physical examination since arriving in the United States. Prior to this, my family and I had been living between Hong Kong and Shenzhen. Back in 2018, a physical examination revealed uterine fibroids, but because they were very small, the doctor had consistently recommended ultrasound monitoring every six months. My condition had been stable for the past few years, so I wasn't too worried.
During this follow-up visit, my family doctor looked at the report and told me that one of the fibroids had grown to 8 centimeters and that I had developed significant anemia.
Hearing this, my heart sank.
The doctor prescribed iron supplements and told me to come back for a check-up in three months. During that time, I took my medication on time and tried my best not to overthink things. In mid-December 2025, the check-up results came back, and my hemoglobin level had returned to 11.4. I was really relieved and felt that things might be slowly getting better.
On the way home that day, I even said to my husband that once my health stabilizes, we could arrange a short trip next year.
At that time, I truly believed that things were still under control.
Later I realized that a sense of control is sometimes just another name for waiting.
(Image caption) On January 27, 2026, Nara received a referral document from the Optum system during her medical treatment in California, marked as "Urgent". The document detailed key information such as the diagnosis (uterine fibroids), the referring physician, and the attending specialist (OB-GYN).
Part Two: The Sudden Incident – Time Suddenly Begins to Accelerate
February 1, 2026, approximately 8 PM.
The house was quiet that day, and the living room lights were no different from usual. But when I came out of the bathroom, I knew something was wrong—I suddenly started bleeding heavily, unlike anything I'd ever experienced before.
I remember my face was very pale at the time, and I had only one thought in my mind: I can't delay any longer.
My husband immediately contacted my family doctor, and we quickly completed the referral and arranged for me to see a gynecologist. Things seemed to be moving forward, but from that day on, I was actually trapped in a state of unease.
For the next few days, I outwardly continued my normal life, cooking and doing housework, but I was constantly on edge. At night, I barely slept, keeping my phone by my pillow and repeatedly checking the time. My fear wasn't just of the illness itself, but of whether I would receive timely treatment and how this unfamiliar healthcare system would treat me.
During those days, I realized for the first time that when a person has a health problem, the most painful thing is not just the pain, but the uncertainty of whether you can successfully enter a system that is willing to deal with you.
I later heard this feeling from many friends who were also living abroad. It wasn't a matter of personal vulnerability, but rather the mark left on specific individuals by a problem with the design of a system.
(Image caption) A corner of the examination room where Nora was treated. The black screen on the wall in the center of the image is not just equipment, but a bridge connecting the individual and the medical system—through a multilingual remote translation system, the patient's language is translated into messages that can be understood by the medical system. It carries not only language, but also the entry point for the individual to enter the system and be understood and responded to by the system.
Part Three: The First Clinic – A Break in Minutes
February 6, 2026.
The weather was beautiful that day; the sunlight shone brightly on the rooftops of the cars in the parking lot, almost blindingly so. My husband and I arrived at Bolsa Medical Group early. Checking in, entering our information, and waiting—everything seemed normal.
The nurse told me I would have to wait about 40 more minutes. I sat in the waiting area, watching the people coming and going, my heart pounding. At 11:47, the nurse called my name again. I took a deep breath and went into the examination room.
The doctor's first words upon entering were:
"Can you speak English?"
I answered honestly that my English is not good, especially medical terminology, which I find difficult to fully understand.
The doctor said, "No."
I quickly took out my phone and handed the doctor the English medical history I had prepared in advance, hoping she would at least take a look at my condition.
She didn't answer, but simply said coldly, "No."
I panicked. I tried asking if I could call my child, who was studying at a university in California, and have them translate for me over the phone. She still just said, "No."
Three rejections, each lasting no more than three minutes.
I still remember that feeling. It wasn't simply that I couldn't understand; it was that I had no chance to engage in a conversation. I came to see a doctor, but I felt like someone locked out. I had my medical history, referral documents, and a clear understanding of my medical needs—but none of that was enough to open that door.
I couldn't help but cry, and in the end, I had to leave the consultation room.
When I went outside and saw my husband, I was completely overwhelmed with emotion. I cried as I told him what had just happened. It was the first time since I came to the United States that I had felt such a profound sense of helplessness in a medical institution: it wasn't that there were no people, no systems, no procedures, but rather that all of these were there, yet none of them were truly open to me at that moment.
Later I read that Title VI of the U.S. Civil Rights Act stipulates that any medical institution receiving federal funding is obligated to provide assistance to patients with language difficulties. This law has been in effect for over sixty years.
That doctor may not have known, or he may not have cared. But that law, and my experience in the clinic, illustrates how deep the gap is between the system and its implementation.
(Image caption) At noon on February 6, 2026, Nara sat on a chair in the clinic's waiting area. The lights were bright, and the chairs were lined up in rows. Those few minutes were quiet, so quiet that you could hear time ticking away.
Part Four: From the Clinic to the Car – A Quiet Descent After leaving the clinic, my husband and I returned to the car.
I sat in the passenger seat, tears streaming down my face. It wasn't just simple resentment, but an indescribable sense of loss—like you'd worked so hard to get here, only to be blocked by an invisible door when you needed understanding the most.
My husband was furious, and his first instinct was to go back and confront the doctor. I knew he was worried about me, but I was surprisingly clear-headed. I didn't want things to escalate into a confrontation; I just wanted to know if there had been any official response to this matter.
I said to him, "Let's go home first."
Looking back now, that statement seems like a concession, but it was actually the only rationality I could still grasp amidst the chaos. Because I vaguely knew that if this matter were to truly have an answer, it wouldn't remain at the point of contention outside the clinic, but must return to the system itself.
That thought—"to get the issue into the formal process"—was the most important thing I did that afternoon.
Part 5: 5:24 PM - For the first time, I felt like I was being caught by the system. On my way home, I dialed the insurance company's number.
I recounted the entire process from beginning to end: the clinic's name, the time of my visit, the doctor's reaction, my request to provide translated materials but being refused, my request for my child to help translate over the phone but being refused, and my physical condition at the time.
To my surprise, the other party meticulously recorded all the details and assigned a case number to the matter. Hearing that number, I felt a little relieved for the first time—it meant that this was no longer just my grievance, but had entered a formal process.
To my surprise, I received a call back at 5:24 p.m. that same day.
The insurance company told me that they have rescheduled me to see another specialist on February 9th and will ensure that I receive the necessary language assistance during the consultation.
I still remember how I felt when I hung up that phone call. It wasn't excitement, but a deep sense of peace. It was like someone who was about to slip away was finally caught by a hand.
For the first time, I truly felt that a system is not an abstract concept. When it starts operating, it can very concretely change a person's situation.
But at that moment, I also realized something else: if I hadn't known about the complaint mechanism, if I hadn't mustered the courage to make that call, if the insurance company didn't have this response process—the outcome would have been completely different. The system's ability to correct errors only occurs when triggered actively by the patient. This threshold of "actively triggering" is actually quite high for many people.
Part Six: The Second Visit—I Can Finally Speak Again
On February 9, 2026, my husband and I went to a second clinic, which was affiliated with the Optum system.
As soon as we arrived at the front desk, nurses Jackie and Jenny looked up and smiled at us. After confirming our identities, their first question was:
"Do you need an interpreter?"
Before I could even feel nervous, they had already connected me with a professional medical translator. When I heard familiar Chinese on the other end of the line, I visibly relaxed.
It wasn't because the translation itself was anything special, but because I finally felt that I could be understood.
After that, I met with Dr. Chuang, a specialist doctor. The whole process was completely different from the first time. He first carefully reviewed my test results, then confirmed my medical history with me line by line through a translator, and finally patiently explained the different treatment options: what conservative treatment is, what the advantages and disadvantages of drug treatment are, what surgery means, where the risks are, and what the possible next steps might be.
That was the first time I truly understood my physical condition, and the first time I felt respected during a medical visit.
It was the same medical visit, the same place in the US, and the same specialist consultation. This time, all four dimensions of the system emerged simultaneously: being understood, being informed, being respected, and being restructured after the previous failure.
This wasn't luck; it was because the system's error-correcting mechanism truly came into play that afternoon.
(Image caption) The second medical system she visited (Optum). Nora walked into the second hospital with unease. It was another medical institution, but this time, she was no longer outside the system, but beginning to be included within it.
Part 7: This experience brought me more than just grievances. Looking back now, the strongest memories of those days are not just the doctor who kept saying "No," nor just me crying uncontrollably outside the examination room.
What I truly remember is the enormous gap between them.
The first thing I felt was the coldness of the system: I had a medical condition, I had the necessary information, and I had a need, but I wasn't even qualified to participate in the dialogue.
The second time, I felt the system's response: the receptionist proactively offered translation, the insurance company reassigned a doctor, and the new doctor was willing to take the time to help me understand my situation.
I gradually came to understand that healthcare is never just about doctors treating patients. It is also an institutional experience comprised of language, procedures, power, insurance, institutions, time, and error correction mechanisms.
The difference between being sick and being sick lies not only in how doctors see you, but also in whether the system allows you to be heard, understood, and supported.
I thought this feeling of being "caught" was purely personal. Later, when I read more about healthcare sovereignty, I realized that this feeling actually has a larger name: it is the mark left by institutional design problems on a specific person.
(Image caption) Dr. Elbert Chang, trusted by Nora, is a certified obstetrician-gynecologist and serves as the medical director for Orange County. In the U.S. healthcare system, individual professional qualifications, clinical experience, and institutional responsibility are rigorously integrated to form a trustworthy and accountable operating mechanism.
Part 8: My First Real Relationship with the System As a new immigrant who had recently arrived in the United States, my understanding of the system here before this was largely based on what others said, what the news wrote, or how the procedures appeared on the surface.
But after this experience, I had a very concrete feeling for the first time: I realized that the system does not only exist in legal provisions, but also in a complaint call, a case number, the arrangement of a substitute doctor, and the moment a translation button is pressed.
This is not to say that the system is without problems. The experience of the first visit itself shows that there are cracks in the system, that some people are indifferent, and that some people make you feel like you are being shut out.
But at the same time, I also saw something else: within this system, there is at least one error correction path that can be activated.
This path doesn't rely on connections or luck, but on you actually speaking out, appealing, and making the problem visible.
But I know that not everyone has this ability. Not everyone knows this path exists. Not everyone, in their most helpless moment, can muster the strength to make that phone call.
This difference in "whether or not the error correction path can be initiated" is what I most want more people to see right now.
Looking back on those days in America, what I remember is not just the cold "No" in the first consultation room, but everything that followed:
That phone call, made with trembling hands,
The insurance company called back at 5:24 PM.
The receptionist at the second clinic proactively asked me, "Do you need a translator?"
And the doctor who was willing to spend two hours explaining all the treatment options.
I finally understand that what changed the outcome wasn't a perfect person, nor a flawless system. What truly changed the outcome was that, in my most helpless moment, the system ultimately caught me.
But for it to catch me, I first needed to know how to ask for help.
This, perhaps, is the most everyday and authentic meaning of healthcare sovereignty: it's not about some grand policy discussion, but about whether a person can be heard when they are sick, whether they can be informed, and whether they can find a way to be caught again after the system fails.
I believe in God. Looking back on this whole experience, I still feel a deep sense of peace. Because I know that even though people may encounter indifference, errors, and harm within a system, there will always be a way to get things back on track.
As Psalm 34:4 says:
"I sought the Lord, and he answered me and delivered me from all my fears."
(Image caption) On July 4, 2024, U.S. Independence Day, Nora and her family arrive in California. The power of a system comes from its ability to correct errors. And correcting errors requires someone to dare to speak up first.
Next article: Why do systems develop cracks?
This is the first article in the first season of GFM's "Healthcare Sovereignty," documenting author Nora's real medical experiences. All names of people and institutions mentioned are real, and the dates and details of her treatments have been confirmed by the author. This article does not constitute any medical or legal advice.